The Cystinosis Research Foundation has pumped up a total of $2,153,048 grants in 2013 to researchers investigating better treatments and a cure for cystinosis.
Cystinosis is a rare metabolic and genetic disease that plagues children and young adults around the world. In 2013, the Food and Drug Administration approved to develop advanced cystinosis treatment initially discovered by CRF-funded researchers.
Federal Programs Related to - Philanthropy, Voluntarism & Grantmaking, General/Other
Private nonprofit organizations whose primary purpose is to promote the practice of charitable giving and volunteering or to represent and serve a wide range of philanthropic and charitable institutions.
Programs that provide consultation, training, contractual services and resources for nonprofit organizations that need assistance in researching funding opportunities, developing proposals to obtain outside funding, and/or in the evaluation of existing grants. Grants Administration; Grants Consulting
Kendall Webb, founder of JustGive.org, brings the Internet into the philanthropic sector as a nonprofit organization. Her donor-advised fund San Francisco-based website connects couples to a plethora of charities through its wedding registries.
Cystinosis Research Foundation Reaches Treatment Milestone with $2.15 Million Grants